Our Meet and Greets all started with an open invite to families with CMD to a picnic in Sherwood Forest. Families were enthusiastic. Those that could come did from various locations throughout the UK. The ones that could not make it wished the event a success but were disappointed that there was not something similar a bit nearer to them. Having listened to these families we decided we needed to take Action. To create a group that was inclusive to every family, wherever they lived.

The power of that meet up made us resolve it would and should happen again. Not necessarily a picnic, but events in different areas of the country that would allow families to meet and get to know each other.

A closed Facebook page has been created for families with Congenital Myotonic Dystrophy amongst them to discuss, plan and share events, problems and acheivements. Open to all the family involved. Click the Blue FB icon button today and join the wider CMD family.

We hope that this action group will facilitate change and parents and children will make lifelong friends along the way.

NOTTINGHAM

Date 8th August 2015 

Picnic in the Woods

Venue

The Retreat.

Sherwood Forest at 2pm

The reception staff in the Retreat will direct you to the picnic field.

WALES

Date 28th August 2015

Exploratory meet up

Venue

Premier Inn Cardiff

SCOTLAND

Date 3rd April 2016

Venue

The Falkirk Wheel

at 12 noon

CARDIFF

Date 20th February 2016

Venue

To be decided

YORKSHIRE

Date Summer 2016 (tbd)

Venue

Sarah's farm

Time (tbd)

Picnic, Pirate & Princess Fancy Dress and treasure hunt.

BLACKPOOL

Date 23rd October 2016

Venue

Blackpool Zoo

Time to be decided
We will be going to see the lights too.

BIRMINGHAM

July 30th 2017

Picnic in the Park 12 noon at

Canon Hill Park

We will be meeting in or around the Cafe

Children in fancy dress is optional

Bubbles and fun for the children

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Also the first day of our awareness campaign. 

SKEGNESS

BUTLINS SKEGNESS

July 14th 2018

Meet up at 12.00

This will be our 2nd Awareness Day

Cure DM will be providing day tickets for people coming just for the day.

For people booking for the weekend the money will be towards travel expenses.

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           PEPPA PIG WORLD

                      October 21st 2018

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Situated in Paultons Park a great day out for                           families of all ages.

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SKEGNESS

BUTLINS SKEGNESS

July 27th 2019

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This will be our 3rd Awareness Day.

We have families coming for the weekend and other families coming for the day.

Always a fun weekend .

We hope you can join us.

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