MEET AND GREETS
Our Meet and Greets all started with an open invite to families with CMD to a picnic in Sherwood Forest. Families were enthusiastic. Those that could come did from various locations throughout the UK. The ones that could not make it wished the event a success but were disappointed that there was not something similar a bit nearer to them. Having listened to these families we decided we needed to take Action. To create a group that was inclusive to every family, wherever they lived.
The power of that meet up made us resolve it would and should happen again. Not necessarily a picnic, but events in different areas of the country that would allow families to meet and get to know each other.
A closed Facebook page has been created for families with Congenital Myotonic Dystrophy amongst them to discuss, plan and share events, problems and acheivements. Open to all the family involved. Click the Blue FB icon button today and join the wider CMD family.
We hope that this action group will facilitate change and parents and children will make lifelong friends along the way.
Date 8th August 2015
Picnic in the Woods
Sherwood Forest at 2pm
The reception staff in the Retreat will direct you to the picnic field.
Date 28th August 2015
Exploratory meet up
Premier Inn Cardiff
Date 3rd April 2016
The Falkirk Wheel
at 12 noon
Date 20th February 2016
To be decided
Date Summer 2016 (tbd)
Picnic, Pirate & Princess Fancy Dress and treasure hunt.
Date 23rd October 2016
Time to be decided
We will be going to see the lights too.
July 30th 2017
Picnic in the Park 12 noon at
Canon Hill Park
We will be meeting in or around the Cafe
Children in fancy dress is optional
Bubbles and fun for the children
Also the first day of our awareness campaign.
July 14th 2018
Meet up at 12.00
This will be our 2nd Awareness Day
Cure DM will be providing day tickets for people coming just for the day.
For people booking for the weekend the money will be towards travel expenses.
PEPPA PIG WORLD
October 21st 2018
Situated in Paultons Park a great day out for families of all ages.
July 27th 2019
This will be our 3rd Awareness Day.
We have families coming for the weekend and other families coming for the day.
Always a fun weekend .
We hope you can join us.