Congenital Myotonic Dystrophy

Awareness Day

Butlins Image.jpg

July 25th 2021

On the 25th July 2021 we are hoping to hold our Awareness day at Butlins. Lots of families are coming and some are staying for a week. Lots of Fun for the children planned and lots of chill out time for the adults. If it is still not safe at that time we will be having another Online Awareness day.

July 25th 2020


On the 25th July 2020 we are having our 4th International Awareness day online.

We will be making a video of all of our children , adding music and sharing Worldwide.  

Please email me with a photo if you wish your child to take part. 


July 27th 2019

2019 awareness day will be on 27th JULY

We will be back to Butlins Skegness for our 3rd                               Awareness day