Congenital Myotonic Dystrophy (CMD)

CMD Families in Action UK provides a link up service to help find other families in your area. We aim to put families with children and young people with Congenital Myotonic Dystrophy in touch with each other.The purpose is to support and arrange meet and greets with people who understand some challenges you may face.You can join our Closed Facebook Group for online contact with other families who find themselves in similar situations for support and friendship. Between us we have a wealth of experience when needing to find resources and how to get the best service for you and your family. 

If you have DM1 or DM2 please feel free to join our FB group to find others for friendship and support.



If you have DM in your family you do not have to have a child with Congenital to be part of our group. We also welcome family friends.



Take that first step and contact us...

We would love to offer you and your family friendship and support.


Contact us with confidence that all matters will be treated confidentially.